
My film describes what living with Spinal Muscular Atrophy (SMA) has been like for me, and I share my hope for children with disabilities that they could find a place of belonging in the world.
My film describes what living with Spinal Muscular Atrophy (SMA) has been like for me, and I share my hope for children with disabilities that they could find a place of belonging in the world.
Online Event
In Person Event
Online Screenings
2023 Edition
0.0
Interesting film
2 reviews
Max Moore
Oct 22, 2026
Aaron offers a powerful, deeply personal perspective on how spinal muscular atrophy (SMA) has shaped his life. His film explores the gap between advances in medicine and technology that make a full, productive life possible and social systems that have yet to keep pace. It is a thoughtful, moving reminder that progress must also include the support and opportunities people need to live the lives they envision. On a personal note, I stumbled across this film by chance. SMA affects approximately one in 15,000 babies born in the United States, making my chance meeting with Aaron on a beach in La Jolla more than a decade ago, and discovering his film all these years later, feel especially remarkable. Aaron, if you’re reading this, I have never forgotten our day on the beach. Your photo still hangs above my desk. Seeing you share your story in your own words makes reconnecting through this film especially meaningful.